Cancer is a word that tugs at everyone’s heart. Cancer is cruel, shattering, and it does not care who you are. But the crazy thing about cancer is that it doesn’t have a face until it’s someone you love. Cancer isn’t supposed to happen to you, until it does. Those heartbreaking stories could never happen to you, until it becomes your reality.
In March of 2020, our whole world flipped upside down with just four words that will be embedded in my memory forever. “Your daughter has cancer.” Those four words took my breath away. In that moment, I forgot how to breathe, the world was fuzzy all around me, and I dropped to my knees with my face buried into my hands. I remember pleading to God to let my baby be okay. Our tiny, perfect, sassy 3-year-old daughter, Lula Beth, was stricken with an awful disease. After months of being sick and many doctor appointments with misdiagnoses, we finally found our answer within our local ER. We went thinking she would have appendicitis or possibly a kidney infection. Never once did cancer cross my mind. It was there they found a football-sized tumor attached to her left kidney, engulfed all around it and taking up most of her insides.
It all started adding up, and I couldn’t help but feel guilty for not knowing sooner or realizing something so awful was growing inside of her. Her body had gotten so weak in the weeks leading up to her diagnosis. She would go days without wanting to eat. I begged her and made her drink chicken broth out of a syringe, trying to get anything I could down her. She was always so lethargic, fevered, and vomited constantly with no reason as to why. We kept getting diagnosed with UTIs or flu bugs. Looking back at the photos of her pre-diagnosis gives me a pit in my stomach. She was so skinny. It wreaked havoc on her little body, and nobody knew what was actually going on within her.
At the ER, we were told they were unsure which kind of kidney cancer she had, so we needed to go somewhere to start treatment and get a plan as soon as possible. We were sent to a children’s hospital where we stayed for a week. I remember it like it was yesterday. Walking into a floor filled with sick children is not for the faint of heart. I remember looking around and thinking, “How is this our new life?” I wanted so badly to trade spots with Lula, with all the kids. Seeing those babies fighting for their lives is something I will never get over. We got into our room and were flooded with papers, nurses, doctors, financial aides, and child life specialists. Overwhelmed with terms I had never heard, equipment I had never seen, and beeps and monitors on 24/7.
We got Lula’s surgery scheduled for the removal of her kidney and tumor. After 6+ hours and a lot of mental breakdowns waiting for our child, we got news that all went well, and they were able to remove it all. They sent the tumor to pathology, and the waiting game began. Those days in between were some of the longest, hardest days of my life. Finally, she was diagnosed with Stage 2 Wilm’s Tumor, a pediatric kidney cancer. Her treatment plan consisted of 13 rounds of chemotherapy—Vincristine and Dactinomycin—within a span of 22 weeks. We had to sign papers for this poison to be entered into our daughter’s body to fight this monster known as cancer. We were taught all the awful side effects it could cause: pain, vomiting, hair loss, numbness, tingling, mouth sores, and more. We learned as much as we could, and then after some healing, we were finally able to head back home and get into our new normal life.
Every Friday was chemo day. We drove 3 hours to and from, and that just became our new routine. We had to be careful in everything we did, because this was all in the timeframe of COVID being introduced to the world. The world was shut down, and our world was turned upside down. We juggled it all as best we could. We took extra precautions and quarantined our little family from the outside world. We had months of just us. We had an amazing community rally around us. So many friends and family stepped up and helped us in the time we needed it most.
Lula was a champion throughout the 22 weeks of chemo. She only got sick from it two times. In fact, after chemo, most of the time she would come home and dance in the kitchen right after being pumped full of those toxic drugs. Her story reached thousands and thousands of people, and she was prayed for by many. Her hair slowly started falling out, and by June, it was time to shave the last little bit off her head. Her big brother wanted to stand in solidarity with her and let her shave his as well. Her cancer journey was the hardest thing of our lives, but it did bring some beautiful moments.
She was deemed “cancer-free” on August 28th, 2020. We celebrated with a big cancer-free parade within our community. She was showered with so much love and encouragement, and that will forever be one of my favorite days. She has had many, many scans following the ringing of the bell. The fight is never really over, even if the hair has grown back. She is finally on yearly scans, but the worry never goes away. Every sniffle or upset tummy sends my anxiety through the roof. Cancer changes you to the core. Cancer creates trauma, it gives you so much worry, but it also teaches you that in this life, good health is really the lottery of life.
We are so blessed that our baby girl, who is now 8 and in 2nd grade, is thriving and healthy. We know this isn’t the case for a lot of people, and if cancer has impacted your world, know you are not alone. Cancer has changed my life completely, and I will never stop rooting for all my heroes who fought, are fighting, or are angels now.